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Natural History Study for Retinitis Pigmentosa (PHENOROD2 Trial)
PHENOROD2 Trial Summary
This trial is looking at the effects of different mutations that cause Retinitis Pigmentosa, a degenerative disease of the retina.
PHENOROD2 Trial Eligibility Criteria
Inclusion Criteria
You may be eligible if you check “Yes” for the criteria belowPHENOROD2 Trial Timeline
Treatment Details
Study Objectives
Outcome measures can provide a clearer picture of what you can expect from a treatment.PHENOROD2 Trial Design
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Who is running the clinical trial?
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- You are currently pregnant or breastfeeding.I have a gene mutation linked to retinitis pigmentosa.I have an eye condition that could affect my retina's function.My retinitis pigmentosa is due to mutations in RHO, PDE6A, or PDE6B genes.
- Group 1: Study Group 1
- Group 2: Study Group 2
- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
Frequently Asked Questions
What ultimate goal is this medical research aiming to attain?
"This clinical study, lasting approximately 12 months, will measure the progression of disease over time through Fundus Autofluorescence (FAF), Dark Adaptometry (DA) refraction and visual acuity using ETDRS or Snellen scales as well as Full-field Stimulus Thresholds (FST)."
Is this experiment still recruiting participants?
"According to clinicaltrials.gov, this particular medical study is not currently recruiting participants; the trial was initially posted on February 12th 2020 and last updated on April 19th 2022. Despite this fact, there are 51 other research initiatives that are actively enrolling patients at present."
Who else is applying?
What site did they apply to?
What portion of applicants met pre-screening criteria?
How responsive is this trial?
Average response time
- < 1 Day
Typically responds via
Most responsive sites:
- UPMC Eye Center: < 24 hours
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