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Decision Support for Dementia Caregivers
N/A
Recruiting
Led By Kalisha Bonds Johnson, PhD RN PMHNP
Research Sponsored by Emory University
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial Must have
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 0-month, 1 month, 3 months
Awards & highlights
No Placebo-Only Group
Summary
This trial is designed to help African American daughters make healthcare decisions for their parents who are living with memory loss to improve the quality of life of African American families.
Who is the study for?
This trial is for African American adult daughters aiding their parents with mild to moderate Alzheimer's or dementia. Participants must be able to use email and the internet, speak English, and help with healthcare decisions. Excluded are those with major neurological diseases other than Alzheimer's or severe psychiatric disorders.
What is being tested?
The study aims to create a decision-making program tailored for African American families where daughters make healthcare choices for parents with memory loss. It involves surveys/interviews about caregiving experiences and testing a culturally specific prototype intervention.
What are the potential side effects?
Since this trial focuses on interviews and surveys rather than medical treatments, there are no direct side effects from medications or interventions typically associated with clinical trials.
Timeline
Screening ~ 3 weeks3 visits
Treatment ~ Varies
Follow Up ~ 0-month, 1 month, 3 months
Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~0-month, 1 month, 3 months
Treatment Details
Study Objectives
Study objectives can provide a clearer picture of what you can expect from a treatment.Primary study objectives
Change in Decision Self-Efficacy Scale Score
Change in Quality of Life-Alzheimer's Disease (QoL-AD) Scale Score
Participant retention
+2 moreAwards & Highlights
No Placebo-Only Group
All patients enrolled in this study will receive some form of active treatment.
Trial Design
1Treatment groups
Experimental Treatment
Group I: Prototype InterventionExperimental Treatment1 Intervention
The prototype intervention will be likely family-based and focused on issues of communication, problem-solving, health system literacy, and family systems, all considered in the context of the African-American (AA) adult daughter role and cultural identity.
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Who is running the clinical trial?
Emory UniversityLead Sponsor
1,697 Previous Clinical Trials
2,603,778 Total Patients Enrolled
23 Trials studying Dementia
3,012 Patients Enrolled for Dementia
National Institute on Aging (NIA)NIH
1,788 Previous Clinical Trials
28,184,473 Total Patients Enrolled
292 Trials studying Dementia
23,634,439 Patients Enrolled for Dementia
Kalisha Bonds Johnson, PhD RN PMHNPPrincipal InvestigatorEmory University
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Eligibility Criteria:
This trial includes the following eligibility criteria:- I am an African American caregiver, over 18, helping a loved one with daily tasks and care decisions, and I have internet and email access.I am an African American, 50 or older, with mild to moderate dementia and can communicate in English.I am a caregiver with experience in managing healthcare for a parent with dementia.
Research Study Groups:
This trial has the following groups:- Group 1: Prototype Intervention
Awards:
This trial has 1 awards, including:- No Placebo-Only Group - All patients enrolled in this study will receive some form of active treatment.
Timeline:
This trial has the following timeline:- Screening: It may take up to 3 Weeks to process to see if you qualify in this trial.
- Treatment: The duration you will receive the treatment varies.
- Follow Ups: You may be asked to continue sharing information regarding the trial for 6 Months after you stop receiving the treatment.
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