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FA Clinical Outcome Measures (FA-COMS Trial)

Memphis, TN
N/A
Waitlist Available
Led By David Lynch, MD PhD
Research Sponsored by Friedreich's Ataxia Research Alliance
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Timeline
Screening 3 weeks
Treatment Varies
Follow Up once every 1 year
Awards & highlights
No Placebo-Only Group

Summary

This trial is meant to help researchers learn more about Friedreich's Ataxia, in order to eventually develop better treatments for patients with the disease. The study will collect data and samples from patients in order to support future studies.

See full description
Eligible Conditions
  • Friedreich Ataxia
  • Neurodegenerative Disease

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~once every 1 year
This trial's timeline: 3 weeks for screening, Varies for treatment, and once every 1 year for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.
Primary study objectives
Friedreich Ataxia Rating Scale
Secondary study objectives
9-hole peg test
Quality of Life Questionnaires
Vision assessment
+1 more
Other study objectives
Optional sample collection

Awards & Highlights

No Placebo-Only Group
All patients enrolled in this study will receive some form of active treatment.

Find a Location

Closest Location:Ohio State University - Neurology· Columbus, OH· 6 miles

Who is running the clinical trial?

University of RochesterOTHER
882 Previous Clinical Trials
552,690 Total Patients Enrolled
Children's Hospital of PhiladelphiaOTHER
746 Previous Clinical Trials
11,402,767 Total Patients Enrolled
9 Trials studying Friedreich Ataxia
570 Patients Enrolled for Friedreich Ataxia
Friedreich's Ataxia Research AllianceLead Sponsor
19 Previous Clinical Trials
4,368 Total Patients Enrolled
19 Trials studying Friedreich Ataxia
4,368 Patients Enrolled for Friedreich Ataxia
David Lynch, MD PhDPrincipal InvestigatorChildren's Hospital of Philadelphia
1 Previous Clinical Trials
12 Total Patients Enrolled
1 Trials studying Friedreich Ataxia
12 Patients Enrolled for Friedreich Ataxia
~328 spots leftby Jan 2030
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