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Hypoplastic Left Heart Syndrome for Hypoplastic Left Heart Syndrome (NPC-QIC Trial)

N/A
Recruiting
Led By Jeffrey Anderson, MD
Research Sponsored by Children's Hospital Medical Center, Cincinnati
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be younger than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 15 months
Awards & highlights

Summary

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

Eligible Conditions
  • Hypoplastic Left Heart Syndrome

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~15 months
This trial's timeline: 3 weeks for screening, Varies for treatment, and 15 months for reporting.

Treatment Details

Study Objectives

Outcome measures can provide a clearer picture of what you can expect from a treatment.
Primary outcome measures
Relationship between the implementation of changes in care delivery with changes in the process

Trial Design

1Treatment groups
Experimental Treatment
Group I: Hypoplastic Left Heart SyndromeExperimental Treatment1 Intervention
Infants diagnosed with Hypoplastic Left Heart Syndrome (HLHS)

Find a Location

Who is running the clinical trial?

Children's Hospital Medical Center, CincinnatiLead Sponsor
827 Previous Clinical Trials
6,563,447 Total Patients Enrolled
1 Trials studying Hypoplastic Left Heart Syndrome
95 Patients Enrolled for Hypoplastic Left Heart Syndrome
Jeffrey Anderson, MDPrincipal InvestigatorCininnati Children's Hospital Medical Center
2 Previous Clinical Trials
4,378 Total Patients Enrolled
Garick Hill, MDPrincipal InvestigatorCininnati Children's Hospital Medical Center
~158 spots leftby May 2026
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