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Treatment for Arteriovenous Malformations (HHT Trial)

N/A
Waitlist Available
Led By Marie E Faughnan, MD
Research Sponsored by Unity Health Toronto
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 10 years
Awards & highlights

Summary

The goal of this study is to better understand HHT, the symptoms and complications it causes ("outcomes") and how the disease impacts people's lives. The investigators are aiming to recruit and gather information together in the Registry from 1,000 HHT patients from four HHT Centres of Excellence in North America. The Investigators will collect long-term information about the people in the Registry, allowing the investigators to understand how the disease changes over time, and what factors can influence those changes. Ultimately, this should help improve treatments for the disease.

Eligible Conditions
  • Arteriovenous Malformations
  • Osler-Weber-Rendu Syndrome

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~10 years
This trial's timeline: 3 weeks for screening, Varies for treatment, and 10 years for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.
Primary study objectives
Prospective and longitudinal characterization of major outcomes of HHT in a cohort of HHT patients, from Centers of Excellence in North America.
The longitudinal characterization of major outcomes of HHT in the North American cohort
Secondary study objectives
A DNA repository of HHT subjects will be created as a resource for future genetic, pharmacogenetics and targeted therapy studies.
Characterizing the determinants of HHT by prospectively and longitudinally measuring the rates of clinical outcome of HHT
Epistaxis which affects 90% of adults with HHT, will be characterized by measuring the rates of clinical outcome.
+2 more
Other study objectives
Participant entered data

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Who is running the clinical trial?

Dartmouth CollegeOTHER
86 Previous Clinical Trials
1,419,237 Total Patients Enrolled
Cure HHTOTHER
3 Previous Clinical Trials
10,100 Total Patients Enrolled
1 Trials studying Arteriovenous Malformations
10,000 Patients Enrolled for Arteriovenous Malformations
Unity Health TorontoLead Sponsor
554 Previous Clinical Trials
454,004 Total Patients Enrolled
2 Trials studying Arteriovenous Malformations
114 Patients Enrolled for Arteriovenous Malformations
~119 spots leftby Dec 2028
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