Coaching for Dementia Care
(DCPR_CC3 Trial)
Recruiting in Palo Alto (17 mi)
Age: 18+
Sex: Any
Travel: May Be Covered
Time Reimbursement: Varies
Trial Phase: Academic
Recruiting
Sponsor: Alzheimer's Disease and Related Disorders Association, Inc
Disqualifiers: Under 18, No leadership endorsement
No Placebo Group
Trial Summary
What is the purpose of this trial?The goal of this clinical trial is to compare staff outcomes in long-term care communities who participate in the intervention versus those who do not. The main questions it aims to answer are: 1. Is employee satisfaction impacted by the intervention and 2. Is dementia care confidence impacted by the intervention. Participants will include monthly coaching visits for the intervention group and completion of surveys pre, immediately post and three-months post. Researchers will compare the intervention group to the control group to see if the intervention impacted the outcomes.
Will I have to stop taking my current medications?
The trial information does not specify whether participants need to stop taking their current medications.
What data supports the effectiveness of the treatment Person-Centered Dementia Care Practice Coaching Intervention?
Research shows that person-centered care, which focuses on the individual needs and preferences of people with dementia, can improve patient outcomes by reducing emotional distress and enhancing quality of life. Although implementing this approach can be challenging, it is considered a preferred model of care in various settings.
12345Is coaching for dementia care safe for humans?
The research does not provide specific safety data for coaching interventions like Person-Centered Dementia Care, but it highlights the need for safe healthcare delivery for patients with dementia, who often experience more adverse events during hospital stays.
26789How is the Patient-Centered Dementia Care Practice Coaching Intervention different from other dementia treatments?
This treatment is unique because it focuses on person-centered care, which emphasizes the individual's abilities, meaningful engagement, and respect for their dignity and choices, rather than just addressing medical symptoms. It aims to improve the psychosocial experience of living with dementia, which is not the primary focus of many traditional treatments.
45101112Eligibility Criteria
This trial is for staff in long-term care communities who work with patients suffering from Alzheimer's Disease and Dementia. The goal is to see if coaching can improve their job satisfaction and confidence in providing dementia care.Inclusion Criteria
Licensed skilled nursing facilities located in the state of Ohio
Licensed assisted living facilities located in the state of Ohio
Exclusion Criteria
Without documented endorsement for participation from facility leadership
I am younger than 18 years old.
Trial Timeline
Screening
Participants are screened for eligibility to participate in the trial
2-4 weeks
Coaching Intervention
Participants in the intervention group receive monthly coaching sessions to implement person-centered care practices
6 months
6 visits (1 per month, in-person or virtual)
Follow-up
Participants complete surveys to assess employee satisfaction, person-centered practices, and dementia care confidence
3 months
Surveys conducted pre, immediately post, and 3-month post
Long-term Monitoring
Staff turnover rates are assessed monthly from pre-intervention to 3 months after completion of the intervention
9 months
Participant Groups
The study tests a 'Coaching Group' intervention, where staff receive monthly coaching visits. Surveys are taken before, immediately after, and three months post-intervention to measure its impact on employee satisfaction and dementia care confidence.
2Treatment groups
Active Control
Group I: Training GroupActive Control1 Intervention
This group will complete the same pre, immediate post and 3-month post surveys as the intervention group but will receive no intervention during the six month period.
Group II: Coaching GroupActive Control1 Intervention
The intervention group will be exposed to six coaching sessions (one a month for 6 months) as well as a nine month touch point to complete the 3-month post survey. This group will have access to a care community coach, resources and use these supports to create action steps towards adopting and implementing person-centered best practices based on an initial self-assessment of their current practices.
Find a Clinic Near You
Research Locations NearbySelect from list below to view details:
Alzheimer's AssociationChicago, IL
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Who Is Running the Clinical Trial?
Alzheimer's Disease and Related Disorders Association, IncLead Sponsor
University of WashingtonCollaborator
References
How do person-centered outcome measures enable shared decision-making for people with dementia and family carers?-A systematic review. [2023]To identify published evidence on person-centered outcome measures (PCOMs) used in dementia care and to explore how PCOMs facilitate shared decision-making and improve outcomes of care. To build a logic model based on the findings, depicting linkages with PCOM impact mechanisms and care outcomes.
Person-centered care for older people with dementia in the acute hospital. [2022]Patients with dementia (PWDs) are often subjected to enforced dependency and experience functional decline and emotional distress during hospital stay. Person-centered care (PCC) with specialized psychosocial interventions, minimally obtrusive medical care, and physical restraints-free practice holds potential to improve patient outcomes. We evaluate the effectiveness of an acute hospital dementia unit (Care for Acute Mentally Infirm Elders [CAMIE]) that adopts a PCC protocol.
[Comparison of digital and conventional life story books on mood, communication, cognition and quality of life in people with dementia in nursing homes: A pilot study]. [2023]Person-centered care (PCC) includes life story, a form of reminiscence therapy that can be useful in the treatment of dementia. We compared the efficacy of using a digital or conventional life story book (LSB) on depressive symptoms, communication, cognition, and quality of life.
Factors influencing the implementation of person-centred care in nursing homes by practice development champions: a qualitative process evaluation of a cluster-randomised controlled trial (EPCentCare) using Normalization Process Theory. [2022]Person-centred care (PCC) has been suggested as the preferred model of dementia care in all settings. The EPCentCare study showed that an adapted PCC approach was difficult to implement and had no effect on prescription of antipsychotics in nursing home residents in Germany. This paper reports the qualitative process evaluation to identify facilitators and barriers of the implementation of PCC in German nursing homes from the perspective of participating practice development champions.
Improving patient-centered care for people with dementia in medical encounters: an educational intervention for old age psychiatrists. [2019]Health care professionals are recommended to deliver patient-centered care in dementia; however, guidance and training on how to do this in practice is currently lacking. The aim of this study was to develop and evaluate pragmatically an educational intervention for old age psychiatrists to promote patient-centered care in their consultations with people with dementia and their carers.
Adverse Events, Functional Decline, and Access to Allied Health Therapies for Patients With Dementia During Acute Hospitalization. [2021]The number of patients attending acute care hospitals with a diagnosis of dementia is increasing. The impact of hospitalization on function and adverse events is perceived to be greater for patients with dementia than those without. This study compared adverse events (falls, wounds, delirium, medication errors, infections, and incontinence), functional decline, and allied health therapy for patients with and without dementia (n = 240). Patients with dementia experienced significantly more adverse events and constant observation by staff, were more dependent with mobility, hygiene and feeding, more often nil by mouth, confused, and incontinent. Patients with dementia were significantly more likely to receive speech and physiotherapy, although they did not significantly improve in function during their hospital stay. Conversely, patients without dementia significantly improved in mobility and continence. The unique health care needs of patients with dementia need to inform models of care, policy, and practice to support safe health care delivery in this vulnerable population.
Effect of collaborative dementia care on potentially inappropriate medication use: Outcomes from the Care Ecosystem randomized clinical trial. [2023]Potentially inappropriate medications (PIMs) cause adverse events and death. We evaluate the Care Ecosystem (CE) collaborative dementia care program on medication use among community-dwelling persons living with dementia (PLWD).
Transforming Dementia Care Through Pragmatic Clinical Trials Embedded in Learning Healthcare Systems. [2022]The current evidence base for testing nonpharmacological interventions for people living with dementia (PLWD) and their caregivers is limited, especially within care settings such as ambulatory care, assisted living communities, nursing homes, hospitals, and hospices. There has been even less attention to translation of effective interventions for PLWD into delivery of care. Thus, there is an urgent need for researchers to partner with these care settings, especially those that follow a learning healthcare systems (LHSs) model, and vice versa to conduct embedded pragmatic clinical trials (ePCTs). These trials are conducted within sites that offer routine care and are designed to answer important, relevant clinical questions and leverage existing electronic health and administrative data. ePCTs set in LHSs create a unique opportunity for researchers, healthcare providers, and PLWD and their families to work and learn together as potentially effective interventions are studied and stress tested in real-world situations. Healthcare settings that embrace research or quality improvement as part of a culture of continuous learning are ideal settings for ePCTs. In this article, we summarize what we have learned from the National Institutes of Health's Health Care Systems Research Collaboratory-funded ePCTs, discuss challenges of ePCTs within settings that serve PLWD, and describe the work of the Health Care Systems Core within the National Institute on Aging's IMbedded Alzheimer's Disease and Related Dementias Clinical Trials Collaboratory that will occur over the next 5 years. J Am Geriatr Soc 68:S43-S48, 2020.
The cost of hospital-acquired complications for older people with and without dementia; a retrospective cohort study. [2022]Increased length of stay and high rates of adverse clinical events in hospitalised patients with dementia is stimulating interest and debate about which costs may be associated and potentially avoided within this population.
Key Intervention Categories to Provide Person-Centered Dementia Care: A Systematic Review of Person-Centered Interventions. [2022]Person-centered care (PCC) is an important concept in many countries' national guidelines and dementia plans. Key intervention categories, i.e., a taxonomy of person-centered (PC)-interventions, to provide person-centered dementia care, are difficult to identify from literature.
Helping Individuals With Dementia Live More Fully Through Person-Centered Practices. [2017]Dementia, including Alzheimer's disease, is a health condition saddled with social stigmas and is widely misunderstood. Person-centered care practices can positively improve the psychosocial experience of living with dementia and have become the gold standard for care because of the resulting beneficial outcomes. The purpose of the current article is to describe four person-centered principles that form the foundation for dementia care practice: (a) the idea that individuals can and do live fully with dementia; (b) quality of life depends not only on the care received but also on the value that others put on their abilities and life; (c) being meaningfully engaged and having purpose are vital to well-being; and (d) respect, dignity, and choice are not only foundational to person-centered care but for basic human rights. Although efforts have been made to mandate person-centered practices, challenges remain that can direct future research and practice efforts. [Journal of Gerontological Nursing, 41(11), 9-14.].
What constitutes good care for people with dementia? [2022]Person-centred care for people with dementia is an aspiration of both family and professional carers, but what constitutes person-centred care and how it can be achieved is less clear. This article describes a Swedish study in which in-depth interviews were completed with both family and professional carers of people with dementia with the purpose of exploring what they considered to be "best care". Important areas of similarity and difference were identified and the results suggest that both groups of carers need to work closely together if person-centred care is to become a reality.