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TSC Biosample Repository and Natural History Database
Cincinnati, OH
N/A
Recruiting
Research Sponsored by National Tuberous Sclerosis Association
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial Must have
* Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).
Timeline
Screening 3 weeks
Treatment Varies
Follow Up average 15 years
Awards & highlights
No Placebo-Only Group
Summary
The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.
See full description
Eligible Conditions
- Lymphangioleiomyomatosis
- Tuberous Sclerosis Complex
- Tuberous Sclerosis
Eligibility Criteria
Inclusion Criteria
You may be eligible if you check “Yes” for the criteria belowSelect...
* Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).
Timeline
Screening ~ 3 weeks3 visits
Treatment ~ Varies
Follow Up ~ average 15 years
Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~average 15 years
Treatment Details
Study Objectives
Study objectives can provide a clearer picture of what you can expect from a treatment.Primary study objectives
Natural History data and biosamples including blood, tissue, or other types of biological samples from individuals with TSC
Awards & Highlights
No Placebo-Only Group
All patients enrolled in this study will receive some form of active treatment.
Find a Location
Closest Location:Cincinnati Children's Hospital Medical Center· Cincinnati, OH
Who is running the clinical trial?
National Tuberous Sclerosis AssociationLead Sponsor