~30 spots leftby Aug 2025

Storytelling for Kidney Transplant Promotion

(LDKT Stories Trial)

Recruiting in Palo Alto (17 mi)
Age: 18+
Sex: Any
Travel: May Be Covered
Time Reimbursement: Varies
Trial Phase: Academic
Waitlist Available
Sponsor: University of British Columbia
No Placebo Group

Trial Summary

What is the purpose of this trial?

This study will examine the effectiveness of first-person storytelling in encouraging patients with end-stage renal disease to pursue Living Donor Kidney Transplant (LDKT). The Living Donation Storytelling Library LDSP is a library of videos from donors and recipients sharing their transplant stories, serving as a narrative-based transplant education resource. This study will investigate if exposure to the LDSP changes patient readiness and motivation to pursue LDKT to ultimately increase the number of donor inquiries and donor evaluations. This study will also test if the LDSP serves as a health-literate and culturally safe education approach that can effectively support racialized communities who have a disproportionately higher need for LDKT.

Research Team

Eligibility Criteria

This trial is for patients with end-stage renal disease who are considering a Living Donor Kidney Transplant (LDKT). It aims to support racialized communities and address health equity. The study seeks participants open to learning through patient education materials.

Inclusion Criteria

Waitlisted and newly referred kidney transplant candidates at the Vancouver Kidney Transplant Program
Able to provide informed consent
English literate
See 1 more

Exclusion Criteria

Inability to understand English and provide informed consent
Unwilling to disclose information on race or ethnicity
I am not eligible for a transplant due to medical reasons.

Treatment Details

Interventions

  • Storytelling (Behavioral Intervention)
Trial OverviewThe effectiveness of storytelling videos versus standard patient education in motivating individuals towards LDKT is being tested. Participants will watch real stories from donors and recipients to see if it influences their readiness for transplant.
Participant Groups
2Treatment groups
Experimental Treatment
Active Control
Group I: ExperimentalExperimental Treatment2 Interventions
2 storytelling videos in addition to standard of care patient education materials
Group II: ControlActive Control1 Intervention
Standard of care patient education materials

Find a Clinic Near You

Research Locations NearbySelect from list below to view details:
Vancouver General HospitalVancouver, Canada
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Who Is Running the Clinical Trial?

University of British Columbia

Lead Sponsor

Trials
1506
Patients Recruited
2,528,000+

Houston Methodist Transplant & Surgery Center of Excellence

Collaborator

Trials
1
Patients Recruited
80+