Education and Assistance for Normal Pressure Hydrocephalus
(NPH Trial)

Recruiting in Palo Alto (17 mi)

+1 other location

Overseen byHossein Zare, PhD

Age: 65+

Sex: Any

Travel: May Be Covered

Time Reimbursement: Varies

Trial Phase: Academic

Waitlist Available

Sponsor: Johns Hopkins Bloomberg School of Public Health

No Placebo Group

Trial Summary

What is the purpose of this trial?

The study aims to estimate Normal Pressure Hydrocephalus (NPH) prevalence and evaluate health equity gaps in Baltimore and Maryland based on zip codes and race, with a focus on the Black community. Interventions will include educational elements about NPH and three layers targeting patients, Primary Care Providers, and community health workers to enhance care access. Short-term outcomes will measure referrals to specialists, while long-term outcomes will assess healthcare utilization. The study aims to identify and reduce racial disparities in NPH care access, informing intervention strategies for NPH and other surgical areas.

Research Team

Hossein Zare, PhD

Principal Investigator

Johns Hopkins Bloomberg School of Public Health

Eligibility Criteria

This trial is for individuals in Maryland, particularly from the Black community, who may be affected by Normal Pressure Hydrocephalus (NPH). It aims to address health disparities and improve care access. Participants should be interested in learning about NPH or are healthcare providers looking to enhance their understanding of NPH management.

Inclusion Criteria

I am over 65 and have completed the Annual Wellness Survey.

Certified Community Health Workers from Maryland who have completed accredited training by the Maryland Department of Health

Primary Care Physicians who have patients in Johns Hopkins University AWV

See 2 more

Exclusion Criteria

People who do not live in Maryland

I am under 65 and haven't completed the AWV survey.

Treatment Details

Interventions

NPH Training (Education)

Trial OverviewThe study tests educational interventions on NPH for patients and primary care providers. It includes training programs designed to increase awareness and improve referral rates to specialists. The goal is also to measure how these trainings affect long-term healthcare utilization among different racial groups.

Participant Groups

3Treatment groups

Experimental Treatment

Group I: Patients and the patient's familyExperimental Treatment3 Interventions

All patients and the patient's family will receive NPH-related education.

Group II: PCPs TrainingExperimental Treatment2 Interventions

Primary Care Provider (PCP) will receive NPH education.

Group III: CHWs assist PCPsExperimental Treatment1 Intervention

A community health worker (CHW) will assist PCP.