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Pulmonary Fibrosis Foundation Patient Registry (PFFR Trial)

N/A
Waitlist Available
Led By Catherine A Spino, ScD
Research Sponsored by Pulmonary Fibrosis Foundation
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up up to 55 months
Awards & highlights
No Placebo-Only Group

Summary

The Pulmonary Fibrosis Foundation Patient Registry will collect data on at least 2,000 patients with interstitial lung disease (ILD) at approximately 40 clinical sites in the US. The Registry is targeting enrollment of approximately 60% of the 2,000 ILD participants to have idiopathic pulmonary fibrosis (IPF). The aim of the Registry is to create a cohort of well-characterized patients with interstitial lung disease (ILD) for participation in retrospective and prospective research

Eligible Conditions
  • Pulmonary fibrosis
  • Interstitial Lung Disease

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~up to 55 months
This trial's timeline: 3 weeks for screening, Varies for treatment, and up to 55 months for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.
Primary study objectives
Body Weight Changes
Change in % predicted FVC

Awards & Highlights

No Placebo-Only Group
All patients enrolled in this study will receive some form of active treatment.

Find a Location

Who is running the clinical trial?

Pulmonary Fibrosis FoundationLead Sponsor
7 Previous Clinical Trials
10,613 Total Patients Enrolled
University of MichiganOTHER
1,863 Previous Clinical Trials
6,439,577 Total Patients Enrolled
Catherine A Spino, ScDPrincipal InvestigatorUniversity of Michigan
Kevin R Flaherty, MDStudy ChairUniversity of Michigan
1 Previous Clinical Trials
10,000 Total Patients Enrolled
~207 spots leftby Dec 2025