Live Donor Champion Program for Liver Disease
(LLDC Trial)

Recruiting in Palo Alto (17 mi)

Overseen byElizabeth A King, MD PhD

Age: 18+

Sex: Any

Travel: May Be Covered

Time Reimbursement: Varies

Trial Phase: Academic

Waitlist Available

Sponsor: Johns Hopkins University

No Placebo Group

Trial Summary

What is the purpose of this trial?

This trial tests a program that trains someone close to liver transplant candidates to help them find living donors. It aims to reduce waiting times and improve outcomes by providing education and advocacy training.

Eligibility Criteria

This trial is for adults over 18 who speak English, are mentally able to consent, and are on the liver transplant waitlist without any current living donors. It's not for those under 18, non-English speakers, anyone with potential live donors already identified, or patients who have had a previous liver transplant or need multiple organs.

Inclusion Criteria

I am on the waiting list for a liver transplant.

Be English speaking

I am mentally capable of understanding and agreeing to the trial's procedures.

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Exclusion Criteria

I have had a liver transplant.

I am on the waiting list for multiple organ transplants.

I am under 18 years old.

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Treatment Details

Interventions

Liver Live Donor Champion Program (Behavioral Intervention)

Trial OverviewThe study tests an educational and advocacy program called the Liver Live Donor Champion Program. This pilot will evaluate two versions of the program to see how well they help expand access to live donor liver transplants by training 'Live Donor Champions' alongside transplant candidates.

Participant Groups

1Treatment groups

Experimental Treatment

Group I: Liver Live Donor ChampionExperimental Treatment1 Intervention

The Liver Live Donor Champion program (LLDC) is the sole educational intervention for this trial. LLDC consists of 2 or 3 monthly sessions (depending on cohort) of approximately 2 or 3 hours each. Each LLDC session is led by a transplant physician or clinical coordinator. The sessions incorporate formal didactics, active-participant learning, personal stories, moderated group discussions, role-playing, and other skill-building exercises. LLDC session topics are as follows: 1) education about End-Stage Liver Disease (ESLD), liver transplantation, and living donation 2) communication skills building 3) Exploring social networks 4) sharing successful donor and recipient stories 5) surgeon and hepatologist panel 6) Program Recap.