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Treatment for Spina Bifida

N/A
Recruiting
Led By Rose Khavari, MD
Research Sponsored by Rose Khavari, M.D.
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
- Primary diagnosis of congenital genitourinary abnormality leading to neurogenic bladder such as myelomeningocele, exstrophy, cerebral palsy, posterior urethral valve, congenital cardiac anomalies, chromosomal abnormalities, etc.
Be older than 18 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up 2 years
Awards & highlights

Summary

A transitional Urology database was created in parallel with National Spina Bifida registry to follow patients with complex congenital urogenital anomalies and be able to prospectively evaluate them. The investigators obtained the standardized questionnaires to collect long-term data regarding patients' genitourinary status including urine and fecal continence, sexuality, fertility, and pelvic health.

Eligible Conditions
  • Spina Bifida
  • Genitourinary Anomalies
  • Cloacal Exstrophy
  • Meningocele
  • Bladder Exstrophy

Eligibility Criteria

Inclusion Criteria

You may be eligible if you check “Yes” for the criteria below

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~2 years
This trial's timeline: 3 weeks for screening, Varies for treatment, and 2 years for reporting.

Treatment Details

Study Objectives

Outcome measures can provide a clearer picture of what you can expect from a treatment.
Primary outcome measures
Quality of life changes

Find a Location

Who is running the clinical trial?

Rose Khavari, M.D.Lead Sponsor
4 Previous Clinical Trials
70 Total Patients Enrolled
The Methodist Hospital Research InstituteLead Sponsor
281 Previous Clinical Trials
81,406 Total Patients Enrolled
Rose Khavari, MD4.016 ReviewsPrincipal Investigator - The Methodist Hospital Research Institute
The Methodist Hospital Research Institute
9 Previous Clinical Trials
326 Total Patients Enrolled
1Patient Review
Do not visit this doctor! They failed to explain procedures, made a mistake in my diagnosis, and kept me waiting an hour beyond my appointment time. The consultation itself only lasted 5 minutes.
~5 spots leftby Dec 2024
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