Nest Software for Cancer Syndromes

Recruiting in Palo Alto (17 mi)

Overseen byHuma Q Rana, MD

Age: 18 - 65

Sex: Any

Travel: May Be Covered

Time Reimbursement: Varies

Trial Phase: Academic

Waitlist Available

Sponsor: Nest Genomics

No Placebo Group

Trial Summary

What is the purpose of this trial?The goal of this clinical trial is to see if a software platform can improve cancer screening in young adults with genetic risk for cancer. The trial will also help improve the software platform (Nest). The main questions it aims to answer are: * Do Nest users know more about their cancer risks and recommended care than non-users? * Do Nest users have less psychological distress than non-users? * Do Nest users share cancer risks with family and other doctors more than non-users? * Are Nest users more likely than non-users to have up-to-date care plans? Researchers will compare Nest users to non-users to see if the Nest users are more likely to do recommended cancer screening. Participants will: * Have a genetic counseling or follow up visit * Take a post-visit survey * Intervention arm only: use the Nest Patient Navigator * Complete screening and follow-up care recommended by doctors

Eligibility Criteria

This trial is for young adults at genetic risk for cancer. Participants must be willing to use the Nest software, attend genetic counseling or follow-up visits, take surveys, and complete recommended screenings and care. Specific inclusion or exclusion criteria are not provided.

Inclusion Criteria

I can speak and read English.

I am between 18 and 39 years old.

Receiving care at Dana Farber Cancer Institute

+2 more

Exclusion Criteria

Not receiving care at Dana Farber Cancer Institute

I do not speak or read English.

I am either younger than 18 or older than 39 years old.

+2 more

Participant Groups

The trial tests if the Nest software platform can improve knowledge about cancer risks, reduce psychological distress, encourage sharing of cancer information with family/doctors, and ensure up-to-date care plans compared to non-users.

2Treatment groups

Experimental Treatment

Active Control

Group I: Intervention ArmExperimental Treatment1 Intervention

Patients in the intervention arm will complete a genetic counseling or follow-up visit with a clinician using Nest Clinical Decision Support and a post visit-survey. Intervention arm patients will be given access to the Nest Patient Navigator.

Group II: Control ArmActive Control1 Intervention

Patients in the control arm will complete a standard genetic counseling or follow-up visit and a post-visit survey.