Neuroendocrine Tumors - Patient Reported Outcomes
(NET-PRO Trial)
Recruiting in Palo Alto (17 mi)
+13 other locations
Overseen ByMichael O'Rorke, PhD
Age: 18+
Sex: Any
Travel: May be covered
Time Reimbursement: Varies
Trial Phase: Academic
Waitlist Available
Sponsor: University of Iowa
No Placebo Group
Trial Summary
What is the purpose of this trial?With so many therapeutic options available (i.e.: biologic therapy, liver directed therapy, radiotherapy and chemotherapy), the purpose of this project is to partner with patients on comparative effectiveness research (CER) to achieve the goal of alleviating undue toxicity, and optimizing effectiveness and sequencing of therapy for neuroendocrine tumors (NET) patients. We will conduct a study of all newly occurring GEP-NET and lung NET cases aged 18 years and older diagnosed between 01/01/2018 through 09/30/2024 across 14 sites participating in the National Patient-Centered Clinical Research Network (PCORnet), enrolling an average of 215 patients per site over the 3 year study period (2515 patients total), allowing up to 60 months of follow-up for medical record outcomes. Participants will complete four online or paper surveys over 18 months; these surveys will focus on patient-reported outcomes, including questions on quality of life, treatment decisions, and experiences with cancer care. Survey data will be linked to participant medical record data to achieve study aims.
Eligibility Criteria
Participant Groups
Find A Clinic Near You
Research locations nearbySelect from list below to view details:
Mayo Clinic RochesterRochester, MN
UT Southwestern Medical CenterDallas, TX
Medical College of Wisconsin, IncMilwaukee, WI
Regents of the University of MichiganAnn Arbor, MI
More Trial Locations
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Who is running the clinical trial?
University of IowaLead Sponsor
University of Pittsburgh Medical CenterCollaborator
Neuroendocrine Tumor Research FoundationCollaborator
University of Texas Southwestern Medical CenterCollaborator
Northern California CarciNET CommunityCollaborator
University of UtahCollaborator
Medical University of South CarolinaCollaborator
Healing NET FoundationCollaborator
Vanderbilt University Medical CenterCollaborator
Allina Health SystemCollaborator