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Bullying in Youth With Muscular Dystrophy and Congenital Myopathies

Toronto, Canada
N/A
Waitlist Available
Research Sponsored by Holland Bloorview Kids Rehabilitation Hospital
Eligibility Criteria Checklist
Specific guidelines that determine who can or cannot participate in a clinical trial
Must have
Be younger than 65 years old
Timeline
Screening 3 weeks
Treatment Varies
Follow Up through study completion, 1 year
Awards & highlights
No Placebo-Only Group

Summary

Bullying is an epidemic in Canada, and rates may be underreported. Youth with a disability were more likely to be bullied that those without disabilities, specifically if the disability was visible. Research has been conducted on the prevalence and effects of bullying in youth with disabilities such as cerebral palsy, obesity, and chronic pain; however, there is a paucity of research involving youth with muscular dystrophy and congenital myopathies. The objectives of this study are to: (1) measure bullying frequency, (2) describe the types of bullying experiences; and (3) explore barriers and facilitators to dealing with bullying by youth with muscular dystrophy or congenital myopathies and their parents. The objectives will be met by an online survey and qualitative interviews of youth with muscular dystrophy and congenital myopathy and their parents.

See full description
Eligible Conditions
  • Muscular Dystrophy
  • Congenital Myopathy

Timeline

Screening ~ 3 weeks
Treatment ~ Varies
Follow Up ~through study completion, 1 year
This trial's timeline: 3 weeks for screening, Varies for treatment, and through study completion, 1 year for reporting.

Treatment Details

Study Objectives

Study objectives can provide a clearer picture of what you can expect from a treatment.
Primary study objectives
Bullying Perspectives
Bullying and Cyberbullying: Perpetrators, Victims and Witnesses Survey (B&C:PVWS)
Demographics Form
+4 more

Awards & Highlights

No Placebo-Only Group
All patients enrolled in this study will receive some form of active treatment.

Find a Location

Closest Location:Holland Bloorview Kids Rehabilitation Hospital· Toronto, Canada· 319 miles

Who is running the clinical trial?

Holland Bloorview Kids Rehabilitation HospitalLead Sponsor
68 Previous Clinical Trials
14,088 Total Patients Enrolled
Children's Hospital of Eastern OntarioOTHER
133 Previous Clinical Trials
60,925 Total Patients Enrolled
~6 spots leftby Mar 2026